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 Anyone get these symptoms?

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beautifulb

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PostSubject: Anyone get these symptoms?   Tue Aug 07, 2012 4:57 pm

Just as an afterthought, I was wondering if any of you get pain in your head/neck to right shoulder and tenderness down entire length of your spinal cord? I have for the longest time and never knew why until now. When my neuro symptoms are severe with numbness or weakness to one side of the body or uneven walk I get panicked. Anyone else do this? Today I am full of apprehension about my future.
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Heidi
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PostSubject: Re: Anyone get these symptoms?   Tue Aug 07, 2012 7:52 pm

This can happen when you have high pressure and here is some information from the IH Research Foundation about Other IIH Symptoms that you might be able to relate to. You should also have a look at their site as it has lots of information on there.

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beautifulb

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PostSubject: Re: Anyone get these symptoms?   Tue Aug 07, 2012 11:30 pm

Thank you Heidi. That is very helpful and I appreciate it!Smile
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BananasMom
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PostSubject: Re: Anyone get these symptoms?   Wed Aug 08, 2012 12:52 am

Yes, actually I do get the neck and shoulder pain on my right side, too. You're not alone! It's worst on my "high pressure" days. Heat sometimes helps this for me.
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beautifulb

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PostSubject: Re: Anyone get these symptoms?   Wed Aug 08, 2012 1:48 pm

Thank you so much, I will definitely try heat!!Smile
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Wylee
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PostSubject: Re: Anyone get these symptoms?   Wed Aug 08, 2012 4:48 pm

Heidi, that page from IIH is so reassuring, even to me. They have enough patients registered that they have data no one else would have access to, and really expands the knowledge base. So good to know that these other symptoms that some doctors may poo poo are very real symptoms of IIH!!
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sinister416




PostSubject: Re: Anyone get these symptoms?   Wed Aug 08, 2012 5:51 pm

I have those same symptoms too, a lot of those extra symptoms aren't really acknowledged by most Neurologist's so I would suggest printing the page off and showing it to your Neurologist when you mention those symptoms.
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Anyone get these symptoms?

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