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bonbon
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PostSubject: mixed feelings   Thu Jul 12, 2012 6:53 pm

Hi everyone,

I am due a lp next week after waiting for 9weeks for them to do it. But have such mixed feeling regarding the lp,
my friends don't really understand about all the symptoms and have said they think its stress. I know that stress can
cause many things but all my symptoms point to iih - even the neurologist said that it was and just needs it confirmed
by lp.

The reason I have mixed feelings is what if the pressure is not high? Does this happen and I could still possibly
have iih because what then what could it be.

I have optic nerve swelling - so much pain behind the eyes at the moment. Headaches on waking, dizziness some
nausesa. I havent been to work for 2 weeks again because of the fatigue i am so tired cant really achieve much.

Any advice would be appreciated
Bonnie
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Wylee
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PostSubject: Re: mixed feelings   Thu Jul 12, 2012 7:46 pm

Bonnie, I know the self induced stress we can feel on that lp to confirm IIH.
The thing is, your opening pressure could fall into the "normal" range but still be too high for you.
Insist of having fluid drawn off and keep drawing it off until you notice a change in your symptoms.
In general "normal" high end stops at 20 cm. Between 20-25 is " borderline high".
My pressures were between 22 & 24. My normal is yet to be found but may be 10.
Just be sure to lay flat after the lp to reduce the chances of getting a headache.
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Heidi
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PostSubject: Re: mixed feelings   Thu Jul 12, 2012 8:32 pm

I have to agree with Linda Bonnie. I think Linda has given you some good constructive advice.
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bonbon
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PostSubject: Re: mixed feelings   Thu Jul 12, 2012 9:09 pm

thank you so much for the advice - it all makes sense after reading that

cheers


bonnie
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BananasMom
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PostSubject: Re: mixed feelings   Fri Jul 13, 2012 1:24 am

*hugs* Let us know how it goes, Bonnie! Smile
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PostSubject: Re: mixed feelings   Thu Jul 19, 2012 4:50 am

Did you have the LP ?
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bonbon
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PostSubject: Re: mixed feelings   Thu Jul 19, 2012 8:42 pm

its been a mission. No still waiting and they are saying that the doctor has resigned and they need to find another doctor to do procedures.

I have complained to the PALS as i have been waiting for 8weeks. Not good

Thanks for asking
Bonnie
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Wylee
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PostSubject: Re: mixed feelings   Sat Jul 21, 2012 5:52 am

Oh no!! After all this time. How awful. Heidi is very knowledgable about the UK system of healthcare, so I am sure she will help point you in the right direction. I do know that she has said in the past that if your pain gets to bad go to the A & E.

Do stay after them so they don't forget about you.
Keeping fingers crossed
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BananasMom
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PostSubject: Re: mixed feelings   Sat Jul 21, 2012 4:07 pm

Oh no, sorry to hear you're still waiting for your LP, Bonnie! :( I hope they get things straightened out soon and you're able to get it done. *hugs* Hang in there, hun!
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bonbon
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PostSubject: Re: mixed feelings   Wed Jul 25, 2012 7:26 pm

I have a provisional date for my lp its on the 7th Aug - thats after complaining to PALS thanks everyone for the advice
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Wylee
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PostSubject: Re: mixed feelings   Wed Jul 25, 2012 7:41 pm

Bonnie, I hope it goes as planned.
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Heidi
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PostSubject: Re: mixed feelings   Wed Jul 25, 2012 8:18 pm

I'm so glad PALS were able to help you, they are a good resource to keep handy incase anything like this happens again. Fingers crossed for you for the 7th hug
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medmisfit
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PostSubject: Re: mixed feelings   Thu Jul 26, 2012 9:30 pm

Ditto..I'm glad it all worked out and keeping my finger's crossed for you!!!
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