Zoe what a nightmare you've had,
I am absolutely shocked that they discharged you. That is appalling, and you should never have just been prescribed Diamox and then discharged. Your IIH neeeds to be monitored at regular intervals by both a Neurologist and an Ophthalmologist.
As an NHS patient you have NHS patients' rights
and they have been blatantly ignored by this Neurologist, and he has totally disregarded the fact he has a duty of care to you. I would contact your hospitals PALS
who will listen to you and any complaint and mediate for you.
Any questions ask away and if you want I'm happy to give you my number.