Nice to come across this website.
I got diagnosed with IIH in September 2010, fortunately my eyes have not been affected, apart from photophobia when the pressure got too high. I had a LP shunt in January this year, which I'm struggling with (long story lol, I'll bore you with it later in the surgery section)
I have Ehlers Danlos Syndrome too, guess I'm extra special! Basically means my joints are hypermobile and have bruise easily.
I work full time for a charity, i'm on sick leave at the moment though.
Live with my partner in London. We have a rescue pug, who I love more than anything.
I guess I'm a frustrated geek, love reading, theatre, cooking and usual stuff.
Oh and after seeing several episodes of Hoarders, I'm obsessed with cleaning! lol