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 Paul diagnosed 2011

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wookie1965
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PostSubject: Paul diagnosed 2011   Sat Apr 28, 2012 9:47 pm

Hi all im Paul, im 46 was diagnosed with iih last May (2011) since then had 6 lps all opening pressure 30 or over. On Diamox sr 1000mg a day got pins and needles all the time. Im so fed up my vision is blurry every morning sometimes most of day ive had to give work up i was electrician couldnt safely do job with blurred vision and headaches all the time. The low pressure headaches after the lp are unbearable just getting back to normal after my last one 4 days ago.
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morrise
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PostSubject: Re: Paul diagnosed 2011   Sat Apr 28, 2012 10:23 pm

Hi Mark,
Welcome to the group Smile

I just had a LP on Thursday headache is starting to ease today. This forum is great for any questions that you have or for any information you need to help you deal with this condition.

Also its great for having a rant if your having a bad day as everyone here knows how your feeling Smile Smile
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wookie1965
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PostSubject: Re: Paul diagnosed 2011   Sat Apr 28, 2012 10:44 pm

[You must be registered and logged in to see this link.] wrote:
Hi Mark,
Welcome to the group Smile

I just had a LP on Thursday headache is starting to ease today. This forum is great for any questions that you have or for any information you need to help you deal with this condition.

Also its great for having a rant if your having a bad day as everyone here knows how your feeling Smile Smile

Hi are you Mark because my name is Paul
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Heidi
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PostSubject: Re: Paul diagnosed 2011   Sun Apr 29, 2012 12:21 am

Hi Paul and welcome to the group. We're so glad to have you here.

You must be really frustrated and disheartened at the moment, having to give up work for the time being because of your vision and the side effects of the Diamox must be hard, I know. The low pressure headache feels worse than the high pressure so I'm glad it's starting to settle down.

We've got lots of information and helpful booklets, plus I'm sure you have been reading some of the members stories and now know you're not alone, especially when it comes to the affects it has on our lives.

We're all here to support you, answer your questions and even to hear you have a rant because we believe in giving you you IIH voice here. We encourage you to keep a symptom log and also a medication log, which isn't just helpful to you, but for your family and doctors too, as it keeps an up to date record of what is happening with you in terms of medication side effects, and IIH symptoms.

If there is anything you need or any questions you need answered, or if you are just needing some help round the forums, just PM any of the Admin team or Moderators, and we will endeavour to help you all we can.

Heidi hug
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morrise
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PostSubject: Re: Paul diagnosed 2011   Sun Apr 29, 2012 10:27 am

Apologies Paul, Mark is my husbands name. Mark on the brain!!!! Smile
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wookie1965
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PostSubject: Re: Paul diagnosed 2011   Sun Apr 29, 2012 1:41 pm

well what another bad day thought the low pressure headache was getting better, no im writing this after 4 co codamol 30/500 and a tramadol feel sick and head is worse than ever im goin for a lie down. This is the worst its been after 3 days normally going on 5th day now and no signs of it improving.
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PostSubject: Re: Paul diagnosed 2011   Mon Apr 30, 2012 5:57 pm

Hi Paul, & welcome to our group. I'm soory to hear you're struggling & wonder if you've talked to physician about a blood patch. It's been several days since LP, so you may be leaking fluid. Unfortnately there aren't a lot of options..lay flat & drink caffiene are the best. If you're not noticing any improvement I'd contact your doctor asap. Hope you find relief soon!
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gemhod
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PostSubject: Re: Paul diagnosed 2011   Mon Apr 30, 2012 9:46 pm

definately drink lots of caffine it works a treat ... low pressure are sooooooo much worse definately keep the fluid levels up and call your doc xxxxx


I am not IIH, I am what kicks IIH when I get out of bed in the morning ;-][b]
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Heidi
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PostSubject: Re: Paul diagnosed 2011   Mon Apr 30, 2012 11:13 pm

Have to agree with that advice. Let us know how you get on. hug
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BananasMom
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PostSubject: Re: Paul diagnosed 2011   Tue May 01, 2012 7:19 pm

Hi Paul! Welcome to our group! Very Happy I hope that by now you are starting to feel better from the post-lp low pressure headache. I've been there and it is no fun! The "laying flat down and drinking caffienated stuff" advice worked wonders for me in the past too. Check in when you can and let us know how you are feeling!
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