and a very warm welcome to the group, I am so pleased hyou joined us. It must have been very frustrating for you trying to get to the root of what was happening to you. It seems that Doctors are always keen to put our headaches down to stress, because this is a common thread through most IIH sufferers posts.
All the symptoms you describe are the usual with IIH, but I'm relieved that your vision isn't affected. I totally applaud how you are trying to adapt your life by finding your limits and working out what you are capable of doing within these limits. This is something we encourage because in time as you recognise what your body is capable of doing, you can then pace yourself and build up to doing more.
As this is an invisible illness and to boot a rare one that very few people have heard of, they look at you and think you look perfectly OK, which is why they dont get it. In time your daughters will be able to recognise the signs when you have bad days, headaches etc, if they haven't done so already.
We do have lots of helpful booklets on living with IIH and how to explain it to people. There is also an extremely accurate video on youtube that explains what IIH does and feels like. Here is the link and you could send it to people you know and ask them to watch it.What is Intracranial Hypertension?
I also want you to remember you are not alone, you are part of the IIH community and you will be understood and we "get it!" You can ask questions or even have a rant and vent as much as you need to, we WILL listen. You have a voice here and there are people who will understand exactly where you are coming from, because they are having the same experiences.