Heidi
Admin1
 |  Subject: Global Rare Diseases Patient Registry and Data Repository (GRDR) Notice and Request for Information (RFI)  Fri Feb 10, 2012 6:21 am | |
| Registry and Data Repository (GRDR) Notice and Request for Information (RFI)| Quote: | | [b]The Office of Rare Diseases Research (ORDR), an organizational component of the National Center for Advancing Translational Sciences (NCATS), National Institutes of Health (NIH), is inviting patient organizations without a patient registry and those with established patient registries to be considered for participation in a two-year pilot project to establish the Global Rare Diseases Patient Registry and Data Repository (GRDR), and to submit background information about their organization for consideration by the project's selection committee. More information may be found at http://rarediseases.info.nih.gov/GRDR. |
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