A very warm welcome to the group
. I know how hard this must be for you as I was around your age when first diagnosed, and I too could not tolerate the Diamox, so was eventually prescribed co-amilofruse which I still take. I was on medication for 12 years before needing surgery and even managed remission, so please don't give up hope. IT was only because of my trigger being hormonal and PCO's that brought my IIH back and I ended up being shunted. It is possible for medication alone to control the IIH, with the occasional LP's, and as I said, remission is possible especially if your trigger is weight related.
Shunting is only done when there is a risk to your sight, and they will regularly monitor you to make sure this is kept under control. The main thing now is to adjust to having this condition and to recognise the symptoms, and what your body can tolerate in terms of everyday life.
We have lots of helpful booklets in our Useful Guides and Printouts
from ourselves and our Partner Organisation the Brain and Spine Foundation, There are also handy log sheets that will help you keep track of your symptoms and medication, so that you can provide your Doctors with as much information as you can when you see them.
There are lots of members here that know what you are going through, and will be able to offer you lots of advice and support, so don't hesitate to ask as many questions as you want and need to. You can PM any of the Moderators or Admin Team anytime for immediate help or advice.
I hope that this helps and remember we are always here for you, for whatever you need, you are not alone.