As part of our work on the Patient and Public Engagement Steering Group for the transition of specialised services during the NHS reorganisation, we would like to make sure the appropriate patient groups have the opportunity to be engaged with the appropriate specialised services providers.

Could you please tell us which of the specialised services from the list below your members regularly use, and whether your group would wish to engage with the providers of the service to ensure patients have a say in the development and delivery of the service.

Specialised services are health services - interventions, clinics, diagnostics, and surgeries - which are for less common conditions, and which are organised and delivered regionally.

This request is for the group of specialised services known as the Specialised Services National Definitions Set. More about this group of services can be found here: www.specialisedservices.nhs.uk/info/specialised-services-national-definitions.

LIST:

1) Specialised radiotherapy (adults), including: brachytherapy, stereotactic radiotherapy, stereotactic radiosurgery, total body irradiation and PET scanning.

2) Bone marrow transplantation (all ages).

3) Haemophilia and related bleeding disorders (all ages).

6) Complex spinal surgery (all ages).

8) Neurosurgery (adults).

10) Cystic Fibrosis (all ages).

11) Renal replacement therapy and kidney transplantation (adults).

13) Cardiology and cardiac surgery (adults), including: electrophysiology, inherited heart disorders, congenital heart disease, pericardial lesions and pathology, pulmonary hpertension and cardiovascular magnetic resonance imaging.

15) Cleft lip and palate (all ages).

16) Specialised immunology (all ages).

18) Rare infectious disease (all ages).

20) Genetics (all ages).

22) Specialised mental health services (all ages), including: eating disorders, specialised mental health services for deaf people, gender identity, maternal mental health before and after birth, child and adolescent mental health.

23) Specialised services for children (children), including: paediatric cardiology and cardiac surgery, paediatric intensive care, neonatal intensive care, paediatric neurosciences, paediatric oral and maxillo-facial surgey, paediatric renal services.

28) Hyperbaric oxygen services (all ages).

29) Specialised respiratory care (adults), including: respiratory intensive care, pulmonary vascular services, complex thoracic surgery.

30) Specialised vascular services (adult), including: vascular disease radiology, and surgical procedures.

32) Specialised ear services (all ages), including: cochlear implantation services.

38) Specialised haemoglobinopathy services (all ages).


Many thanks for your help,

Nick Meade

Policy Analyst


As a group and organisation we have a greed to take part in this, and welcome your views and anything you would want us to put forth regarding Specialised services.

Heidi