The I Have IIH Foundation, is a place you can come to and share diverse experiences on coping with IIH. We know you want a better life with IIH, and we can help you!
Subject: Donna - diagnosed 2009 Sun Sep 04, 2011 8:21 am
I Hope you are all as well as can be??? Well I was diagnosed with iih in April 2009, at the age of 29 after years of bein treated for lupus, they then discovered I was having "migraines" which I didn't believe was all it was, so I had my eyes tested at specsavers where papilledema was discovered, then I was sent for an Mri when the Ih was discovered. In just under a year I was given my first lp shunt, which was revised 9 months later when it blocked but since that I struggle to work full time but still manage it for now , I look forward to meeting you all xx
medmisfit Admin2
Subject: Re: Donna - diagnosed 2009 Thu Sep 08, 2011 4:33 am
Hi Donna, and welcome to the group! I too am struggling to keep up w/ full time job right now, it's not always easy but tends to ebb and flow for me. I hope you'll find more relief and continue to improve condition as you learn tricks for adapting your environment and taking the edge off your pain. There's a lot of information in this forum, so I would encourage you to browse. I'm really glad you found us and think you'll find a lot of support here!
DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Subject: Donna - diagnosed 2009 
Sun Sep 04, 2011 8:21 am
meeting you all xx 
