Hi Emily and a very warm
to the group. I am so sorry you're going through this, especially at a time when you are wanting to be out and about with your friends, and just having a normal teenage life. However, don't let it dishearten you and let it put you off fulfilling your dreams.
My daughter had glandular fever at 14 for 2 years, and she too missed a lot of school, so her exams weren't as good as she hoped. although she no longer has glandular fever, she still suffers because of it, but she did go to college after she left school, for 5 years, retaking her GCSE's and she also went on to get 2 A levels.
The reason I'm telling you this is to give you hope and encouragement that you can overcome this and go on to do the things you want to do. I know her illness isn't the same as IIH, but it was as debilitating, and she still has flare ups, but she never lost her determination that it would get in her way, and I know you can be just as determined. We will support you all the way, and always be here for you.
What we have to do now is to help you to adapt to living with IIH, and find ways to make your life easier and things more do-able. It's going to be trial and error to start with, but I'm confident that we can all help you to find a better way to cope and manage everything.
Hopefully we'll find people your age for you to talk to. In the meantime we're here for you. You can pm me or email me at firstname.lastname@example.org for anything.