Hi Vanessa and a warm
to the group. I understand exactly where you're coming from and I know how frustrated and low you must feel. It is very hard to come to terms with all the symptoms of IIH and how it affects your everyday life and emotions. It's especially hard for families, more so when you have young children who don't understand why Mummy is poorly, and you want to protect them too so that they don't worry.
You have a lot going on with the asthma, benign tumour and pernicious anaemia, so it is understandable that you are depressed, it would be hard not to be. I myself suffered from severe depression 10 years ago after my first shunt, but that wasn't just down to the surgery but more because there were so many things to deal with, I couldn't concentrate on my recovery. So you aren't alone with feeling like you do, because at some point we all go through it.
Dealing one day at a time, is the right attitude to have, and I would recommend that sufferers do that. Hopefully when you have your shunt, you will start to notice a vast improvement and will be able to function a lot better. IT might not happen over night because your body has to get used to the shunt, but it will happen.
We have some guidesheets that I would like you to read, you can download them and print them off too, and give them to your partner, family and friends. They were written by myself based on my 20 plus years experience with IIH, and hopefully you will find them a big help.
Here is the link to them Useful guides and printouts
We are here to help and support you whenever you need us, and you can PM me anytime, and if you would like a one to one chat with me in the chatbox when we are on here together, let me know and I will come and have a chat with you. Remember you are not on your own, and you are now with people who understand and know what you're going through.