Dawna's IIH Success
I would have to say that I have been fortunate as well. I was diagnosed in 2002, when I went to a routine eye appointment. I had suffered from migraines all my life but was always told to suck it up it is just a heache and it runs in the family (the headaches). I was referred to the opth in 02 and neurology, then had a spinal tap done my opening pressure was high but my papiladema was not too terrible. They tried diamox but I did not do well with it. So they decided to trat me with a blood pressure pill. I was fine all the way from 02 until 07 then out of the blue my papiladema and everything else under the dun shot through the roof. It was littlerally over night. After countless doctors visits (no one could figure out what was wrong with me even with a pre-existing condition) I finally saw the right doctors and they set me up for emergency VP Shunt surgery. I was in the hospital for 5 days and found out that my Neuro surgeon is rated number one in my area. I also found out that my Neuro eye doctor specializes in my condition. His eye apts are anywhere from 6 to 8 hours long. I have to take a lunch break while a dialate. I have been great ever since my surgery, have not had to do any more spinal taps had a couple of CT scans and Xrays just to be sure everything is ok. I have occasional headaches but I think they are just normal headaches nothing at all like before. I am so happy that I stumbled apon the doctors that I have.