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 Nahant Joins You

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nahant
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PostSubject: Nahant Joins You   Sun Feb 13, 2011 5:59 pm

Hello. My name is Nahant and I have just joined IIH. My 79 y.o. husband had been falling and moving slowly for the past several years but it was not until these falls became increasingly frequest and without warning or apparent cause...in November 2010...that we started the slow and stumbling path of neurological assessment. NPH keeps coming up as the most likely cause. Friday he had a LP with pre and post assessments. Immediately post-procedure he noted a feeling of normalcy returning to both feet, but his post procedure gait, balance and neuropsych assessments were not improved. Fatique, hunger and other less than ideal environmental factors may have contributed to this. By the end of the day we were both drained and discouraged and must wait until Tuesday to learn the medical formulation and recommendations...most specifically, will he be a candidate for shunt surgery, what can be expected in his case, and what quality of life might he have without surgery. Yesterday was a day of rest for both of us and in the evening he commented that he felt his balance might have improved some. I am making note of subjective and objective observations, but feeling very alone in this journey. Thank you for your welcome and I look forward to any guidance you all can provide.

Nahant
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Heidi
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PostSubject: Re: Nahant Joins You   Sun Feb 13, 2011 9:25 pm

Hi Nahant and a warm welcome to the group. I completely understand how tiring and frustrating it has been for you both, and it must be a tremendous worry to you both too. I have managed to find a website that has personal stories and information about NPH, which I think will be a great help to you. there are personal stories on there and I'm sure once you have read them and read all the information on there, that your mind will be put at rest. I hope it does. Here is the link all you have to do is click on it and it will take you there. They also provide a free, personalized NPH information packet.

Life NPH


Please continue to use this group for support and I do hope that your husband will soon be back to a better quality of life. Let me know if this information was helpful hug
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nahant
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PostSubject: Re: Nahant Joins You   Mon Feb 14, 2011 2:23 am

Heidi, I appreciate your prompt on-target response. There is good information on that site and I certainly did resonate with the personal stories. The site is sponsored by Codman, one of the leading shunt makers, which is something to keep in mind as I am also aware of some of the downsides of the procedure. But it does offer hope and I thank you!

Nahant
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