First of all you should know that you are not alone. We all know how you feel. It is an isolating disease, and even when other are around I feel alone. I think it is because it is hard to make other know exactly how we feel. My doctor asked me one time, how I felt, and I told him I don't know anymore, I have no idea what normal is as I haven't felt normal for years. I get down alot because I feel like I am a burden to all those around me, but the one thing that keeps me going.............is my faith is Jesus Christ. I know that in my darkest hour that he is with me, he knows what I am going through and he will get me through it. I was dx in 2004 but had the symptoms for 2 years before that. I make the best that I can out of my life, even though it is one of constant pain, I always try to find good in everything. I hope and pray that your drs can get you to a place of tolerence, and I will pray for you daily. I am always here to lend an ear, so don't be afraid to say how you feel. God Bless and I am here if you need me.