Hi, I'm an old member who hasn't been around for a long time.
I was diagnosed several years ago, and am on Diamox and furosemide as my main medications, with oxycodone for pain.
My vision has remained stable, but over the last couple of years, I've experienced chronic widespread pain, or fibromyalgia. I didn't realize until reading the link here, that many with IH also have fibro. It is a lovey addition to the other pain!
I worked closely with Heidi on another IH site, and am so pleased with what she has done here! She has had this vision for years, and it is so inspiring to see it come to life.
I plan on popping in and out frequently, and just rest assured that we have all found a safe landing spot here!