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 Rare Disease Day

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Heidi
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PostSubject: Rare Disease Day   Thu Jan 27, 2011 1:02 pm








Wear Jeans on 28 February to support World Rare Disease Day
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KMRich
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PostSubject: Re: Rare Disease Day   Fri Feb 11, 2011 7:05 am

Another promotion for World Rare Disease Day is being done by the IHRF on facebook. Here's what they've posted and everybody is joining in on the action!

Let's show the World the faces of IH on The Wall of Hope! Please see attached link for information on what to do. Don't forget to tag your pictures ~ The Wall of Hope continues to grow!!!

Wall of Hope, Rare Disease Day 2011 |
Intracranial Hypertension Research Foundation
www.ihrfoundation.org

Intracranial hypertension (IH) is an invisible disorder; people with IH often look fine, on the outside, but are, in fact, suffering terribly. It also is an illness that can strike anyone. This year, as part of the effort to raise public awareness of intracranial hypertension and Rare Disease Day on February 28, 2011.


Karla Richardson IH Brain Pain Team Together We CAN Make a Difference! 000000www.IHBrainPain.org
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Rare Disease Day

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