I was diagnosed two years ago this may. I have been down the root of having lumber punctures every 6-8 weeks to see if I was one of the lucky ones where the IIH goes. But it didn't so I have had the Venogram, & angiogram with the lumber puncture to see whats actually causing the raised cfs fluid.
They found I have what they called a floopy vein
. When my csf is high this vein is narrowed. But when the csf fluid is taken away to a normal level this vein comes back up again. This the Neuros think that if I have a stent operation this will reinforce my floopy vein which hopfully will let the csf fluid flow around my ehad & spine like it should do.
A Stent is a small tube of metal. The operation is done under general aneshetic & is a key hole procedure. It is done as a angiograme.
So thats me & my story of my journey with IIH. I look forward to seeing you all around here