Hi Krissy, I read this twice because I was so shocked at the way you have been treated, and have had no help whatsoever in trying to help you find a solution and decent treatment. At least you are going to see a new neurologist, so we can prepare for that with the kind of questions that should get you some answers and hopefully some progress.
It also sounds like some damage may have been done to your sciatic nerve, which would explain the electric shock like feeling. I know from my own experience, as the nerves in my back were damaged by ther lumbar punctures and the LP shunt that I had, and I had the same problems. This is something you need to bring up when you see your new neurologist, so that you can be given the correct medication to help it.
Unfortunately, there are doctors who don't know very much about IIH, or just know the basics, and this could be why you have had so many different explanations. It is not an appropriate response to say you have to live with the headache, and you are right to question it and demand the correct treatment and diagnosis.
I applaud your efforts on trying to help yourself as much as you could, especially under the circumstances, but in the long run you need to be on the right medication, and be getting the right treatment in order for your symptoms to be under control.
If you are happy to, we can help you prepare the questions and help you to be ready for when you see your new neurologist, and get you on the right path.