and welcome, I can understand you being petrified, especially as you have been given a diagnosis and then been left hanging. I'm very surprised that after having a lumbar puncture, usually done by a neurologist, that you were sent home without medication or anything, nor were told that it was IIH.
What usually happens when a lumbar puncture has been done and a diagnosis made, is that you are then put on Diamox, and have eye tests and possibly an MRI scan. If you are having to wait to see a Neurologist I would say that is what he will do.
However, you've had your diagnosis and a scan, so therefore with this firm diagnosis you should have left hospital with information about what it was. It could be that they have decided to wait until you have this appointment before prescribing Diamox.
Is your doctor prescribing suitable pain medication for your headaches? He is able to do that at least, and he could always contact the Neurology department regarding any medication. Waiting till Christmas for an appointment is a long time if you are still having symptoms and aren't having them monitored.
What I suggest you do, is from now on keep a diary and record all your symptoms from the minute you get up till bedtime. The more information you have the better, for when you see the neurologist. You could also try contacting your hospitals PALS
, they can mediate for you and speak to the necessary people, and may even be able to get your appointment brought forward, especially if you explain to them your worry of being diagnosed with IIH and that you have been told you won't see a neurologist till Christmas. They are very helpful and are there for cases such as this.
In the meantime, ask your GP if there is anyway he can get someone to see you at the hospital sooner, and also to make sure you are on adequate pain medication.
I know there are some horror stories on the net, but to be honest, there are a lot more success stories too, which unfortunately don't get posted. The best thing for you to do, is remember that for each person it can be a totally different experience, and that is why we focus on the positives of living with IIH, because we know it can be done. Message me any time you want, ask anything you like, and remember we are here for you and you wont be going through this alone.