The I Have IIH Foundation, is a place you can come to and share diverse experiences on coping with IIH. We know you want a better life with IIH, and we can help you!
Subject: When do you think you need support most? Mon Sep 06, 2010 9:09 am
When do you think you need support most? Do you need it at certain times as something comes up, or all the time? Is it mainly information you want and need, and if so which information is of most help to you?
We hope you take the time to let us know, as the more we know you need, the more we can help you.
Guest Guest
Subject: Re: When do you think you need support most? Wed Dec 21, 2011 5:11 pm
I feel like there is not enough awareness and education about Intracranial Hypertension out there. I don't know about other members, but I hadn't heard of the condition until I had been diagnosed, and even though it was over a year ago, every day I still feel like I am learning new things about the condition.
Nowadays, I am trying to educate my friends about the condition. Some people are scared, it is something they have never heard of and they don't know how to handle it. It would be helpful if there was a guide for explaining your condition to friends and family. Or even a guide which was available that we could just give to our friends and family so that they could educate themselves. This is one stumbling block I always run into.
DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Subject: When do you think you need support most? 
Mon Sep 06, 2010 9:09 am
