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 Sabines - diagnosed 1998

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Mazzel114
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PostSubject: Sabines - diagnosed 1998   Wed Aug 18, 2010 8:30 am

Hi I'm Sabine, I'm 18 year old.
I was diagnosed IIH when I was about 12 or so.
Before that I had to walk 3 more years with that headache! That was really hard, because the doctors didn't know what 'my disease' was..

When I was 12 they finally knew it and I got a shunt. I worked very well, but when you're growing the shunt will be to tight. So now I again have that headaches and already 3 lumbal punctions :( Before I got the shunt I already got 15 of them.
Friday I'll visit the doctor and then we'll talk about the shunt if it's gonna be replaced or so.

That was about me :P Sorry for my English, I'm Dutch so sometimes it's a little bit hard for me. Smile
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Heidi
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PostSubject: Re: Sabines - diagnosed 1998   Thu Aug 19, 2010 7:32 pm

hug Hello Sabine and welcome to the group. Your English is very good so please don't apologise. I can't imagine how hard it has been for you growing up with this condition, it must have been so upsetting and frustrating for you. I didn't realise either, the problem of growing up with a shunt.

I know how horrible the lumbar punctures can be, and when you have a working shunt that prevents that, going back to having them makes them feel worse than before, because I suppose it's like starting over again.

I hope that your new shunt will be planned for soon, and will be as successful as this one has been, so I will be thinking of you on Friday and wishing you lots of luck.

Best Wishes

HeidiX
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jend73
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PostSubject: Re: Sabines - diagnosed 1998   Sun Sep 19, 2010 11:26 pm

Your english is very sweet.
So sorry you are going through this at such a young age. Stay strong, and I hope everything went well with your new shunt.
Jen D.
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