HomeRegisterLog inFollow us on facebookFollow us on twitterFollow us on youtubeFollow us on LinkedinFollow us on PintrestContact usFeedback

Share  | 

 Sabines - diagnosed 1998

View previous topic View next topic Go down 

PostSubject: Sabines - diagnosed 1998   Wed Aug 18, 2010 8:30 am

Hi I'm Sabine, I'm 18 year old.
I was diagnosed IIH when I was about 12 or so.
Before that I had to walk 3 more years with that headache! That was really hard, because the doctors didn't know what 'my disease' was..

When I was 12 they finally knew it and I got a shunt. I worked very well, but when you're growing the shunt will be to tight. So now I again have that headaches and already 3 lumbal punctions :( Before I got the shunt I already got 15 of them.
Friday I'll visit the doctor and then we'll talk about the shunt if it's gonna be replaced or so.

That was about me :P Sorry for my English, I'm Dutch so sometimes it's a little bit hard for me. Smile
Back to top Go down

PostSubject: Re: Sabines - diagnosed 1998   Thu Aug 19, 2010 7:32 pm

hug Hello Sabine and welcome to the group. Your English is very good so please don't apologise. I can't imagine how hard it has been for you growing up with this condition, it must have been so upsetting and frustrating for you. I didn't realise either, the problem of growing up with a shunt.

I know how horrible the lumbar punctures can be, and when you have a working shunt that prevents that, going back to having them makes them feel worse than before, because I suppose it's like starting over again.

I hope that your new shunt will be planned for soon, and will be as successful as this one has been, so I will be thinking of you on Friday and wishing you lots of luck.

Best Wishes

Back to top Go down

PostSubject: Re: Sabines - diagnosed 1998   Sun Sep 19, 2010 11:26 pm

Your english is very sweet.
So sorry you are going through this at such a young age. Stay strong, and I hope everything went well with your new shunt.
Jen D.
Back to top Go down
Sponsored content

PostSubject: Re: Sabines - diagnosed 1998   

Back to top Go down

Sabines - diagnosed 1998

View previous topic View next topic Back to top 
Page 1 of 1

Permissions in this forum:You cannot reply to topics in this forum
www.ihaveiih.com :: Living with IIH ::   :: Women and IIH-
Jump to:  
DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Protected by Copyscape Web Copyright Protection Software
Top Disability Websites
Free forum | © phpBB | Free forum support | Contact | Report an abuse | Free forum