Hi - My name is Janna. My story is pretty short, but could be longer because I've had headaches upon arising for many years. I've tried several different pillows and thought I had arthritis in my neck. I also get migraines pretty often that make me nauseated. I've heard a scritch-scratching noise in my head since this fall. I began to have pain in my left eye right after New Year's. It felt like a toothache - could feel my entire eyeball. Finally after a few days I went to an optometrist who noted the papilledema. He sent me to an opthalmologist who sent me to an internist who sent me to a neurologist. Last Thursday I had an LP. The opening pressure was 320. I'm doing OK now, but did have to go back in this week for a blood patch.
I'm 39, obese, and have been taking medication for high blood pressure for 3 years. I am allergic to sulfa so have been told I can't take Diamox. The neurologist told me to go ahead and lose weight because it would be good for my overall health, but not to count on it curing the IIH.