HomeRegisterLog inFollow us on facebookFollow us on twitterFollow us on youtubeFollow us on LinkedinFollow us on PintrestContact usFeedback


Share  | 
 

 Janna - diagnosed 2009

View previous topic View next topic Go down 
AuthorMessage
uffdamom
Member
Member
avatar


PostSubject: Janna - diagnosed 2009   Fri Mar 20, 2009 11:59 pm

Hi - My name is Janna. My story is pretty short, but could be longer because I've had headaches upon arising for many years. I've tried several different pillows and thought I had arthritis in my neck. I also get migraines pretty often that make me nauseated. I've heard a scritch-scratching noise in my head since this fall. I began to have pain in my left eye right after New Year's. It felt like a toothache - could feel my entire eyeball. Finally after a few days I went to an optometrist who noted the papilledema. He sent me to an opthalmologist who sent me to an internist who sent me to a neurologist. Last Thursday I had an LP. The opening pressure was 320. I'm doing OK now, but did have to go back in this week for a blood patch.

I'm 39, obese, and have been taking medication for high blood pressure for 3 years. I am allergic to sulfa so have been told I can't take Diamox. The neurologist told me to go ahead and lose weight because it would be good for my overall health, but not to count on it curing the IIH.
Back to top Go down
Heidi
Admin1
Admin1
avatar


PostSubject: Hi Janna   Sat Mar 21, 2009 1:15 am



It must have been really overwhelming for you, as well as worrying (hugs), although in a strange way a relief too. Did your doctor not discuss an alternative to the diamox with you, it might be a good idea to ask him, as it can also be treated with frusomide or co- amilofruse. He obviously will know which ones might be better for you.

Losing weight is hard, especially when you feel unwell much of the time with the headaches, and you do get so tired with IIH, so it's easier said than done I know myself. I'm so glad you joined our group, and please ask any questions we are here for you. I hope you like it here and it helps you.

Heidi x
Back to top Go down
http://www.ihaveiih.com
Charlie
Member
Member
avatar


PostSubject: Re: Janna - diagnosed 2009   Fri Mar 27, 2009 8:42 pm

:flower: Hiya and welcome. I hope you find lots of usefull info here. Or just ask any questions we are here to give support.
Back to top Go down
uffdamom
Member
Member
avatar


PostSubject: Re: Janna - diagnosed 2009   Tue Apr 07, 2009 3:43 am

I was changed to Lasix from HCTZ for my high blood pressure in October. It did work well for the high blood pressure, but it must not be doing a lot for the papilledema. Who knows? It could be helping. I don't know how much papilledema I had before I started taking it or if my pressure had been even higher.
Back to top Go down
Heidi
Admin1
Admin1
avatar


PostSubject: Re: Janna - diagnosed 2009   Tue Apr 07, 2009 3:56 pm

There is a chance that it will have helped it, as you can still have all the symptoms without the papilledema. Although your doctor would have to monitor you very regularly to see the changes I think. It's a difficult one I know :scratch:
Back to top Go down
http://www.ihaveiih.com
Titch
Member
Member
avatar


PostSubject: Re: Janna - diagnosed 2009   Thu Apr 16, 2009 9:42 am

Hello uffdamom,

I just wanted to say hi :flower:
Back to top Go down
Sponsored content




PostSubject: Re: Janna - diagnosed 2009   

Back to top Go down
 

Janna - diagnosed 2009

View previous topic View next topic Back to top 

 Similar topics

+
Page 1 of 1

Permissions in this forum:You cannot reply to topics in this forum
www.ihaveiih.com :: Living with IIH ::   :: Women and IIH-
Jump to:  
DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Protected by Copyscape Web Copyright Protection Software
Top Disability Websites
Forum free | © phpBB | Free forum support | Contact | Report an abuse | Free forum