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 Just Diagnosed

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julia
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PostSubject: Just Diagnosed   Tue Oct 24, 2017 9:49 pm

Hi, just wanted to say hello as have just been diagnosed and wanting to find out about the condition, what to expect from treatment and quality of life

I was referred to ophthalmologist after the optomotrist identified papilloedema. While I have had some headaches and visual problems, they were not so much that I was worried. Since then, I have had numerous tests and scans, and yesterday LP with an opening pressure of 28mmH2O. MRI booked for next week and started on Diamox (hating the SE).

The diagnosis has been a bit of a scary time, but look forward to getting to know more about IIH and talking to people who are also living with the condition

Julia
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Sophiasmom
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PostSubject: Re: Just Diagnosed   Wed Oct 25, 2017 5:30 pm

Hi Julia;
welcome to the site.  there's lots of information here, and hopefully one of us will be around to answer any questions you have as they come up.  sorry about your diagnosis, I hope things go smoothly to bring your papilledema down.
Deb
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julia
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PostSubject: Re: Just Diagnosed   Thu Nov 02, 2017 10:46 am

Thanks Deb, me too Smile
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medmisfit
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PostSubject: Re: Just Diagnosed   Thu Nov 02, 2017 3:58 pm

Hi Julia, welcome to the forum! The site is full of a lot of information, so check it out and let us know if you have any questions. You may want to start with the Useful Booklets and Guides in Living with IIH because there is a lot of information regarding the disease, treatments, etc.

I hope the MRI goes well and you adjust to side effects soon.

Take care,
Julie
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