HomeRegisterLog inFollow us on facebookFollow us on twitterFollow us on youtubeFollow us on LinkedinFollow us on PintrestContact usFeedback


Share  | 
 

 second lp

View previous topic View next topic Go down 
AuthorMessage
kimdemoor

avatar


PostSubject: second lp    Wed May 17, 2017 1:09 am

I had a second LP today because my vision was getting worse and headaches where increasing over the last month or so. My first LP was march of this year with an opening pressure of 50 and 20 cc fluid drained. Today opening pressure was 49 and 20 cc fluid drained. I am a bit concerned that the pressure is still that high, while I am taking diamox and lasik. And this LP was not as smooth as the first, I felt most of the procedure as my bp was really low and they reduced the amt of iv drugs, it was very uncomfortable. I was given a low dose of norco once I got to the room to lay for 3 hrs. The pain is still very bad. The only time I don't feel any pain is laying still while on my side. I am so confused with the ins and outs of iih and not a lot of people understand. I just wish it would all stop.
thanks for listening     thank you
Back to top Go down
Sophiasmom
Admin2
Admin2
avatar


PostSubject: Re: second lp    Wed May 17, 2017 6:42 am

I'm so sorry Kim, for what you are going through.  it sounds miserable.  are they thinking about doing a shunt?  with your pressure so high and it affecting your vision and not much change with the meds, it seems like that might be the next step.
Back to top Go down
medmisfit
Admin2
Admin2
avatar


PostSubject: Re: second lp    Wed May 17, 2017 8:01 pm

Ugh, I'm sorry..that sounds awful! I had a couple bad LP experiences, but can't imagine not being able to be fully medicated. I wonder if your blood pressure is higher because of the pain. I know it contributes to mine when IIH is acting up. Do you get any relief after they do the LP? It doesn't seem like they drain near enough. I usually had a closing pressure in the mid-teens or single digits, of course I think my pressure was only over 50 once.

A shunt seems like the next logical step. I was taking Diamox and Lasix before my LP shunt 20 years ago, but they weren't helping me at that point either. VP shunt wasn't an option at that time, but I got one a couple years ago and it seems to work much better.

I would definitely ask for a plan, if they haven't discussed anything with you yet.

Keep us posted!
Back to top Go down
Sponsored content




PostSubject: Re: second lp    

Back to top Go down
 

second lp

View previous topic View next topic Back to top 
Page 1 of 1

Permissions in this forum:You cannot reply to topics in this forum
www.ihaveiih.com :: Living with IIH ::   :: Women and IIH-
Jump to:  
DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Protected by Copyscape Web Copyright Protection Software
Top Disability Websites
Forumotion.com | © phpBB | Free forum support | Contact | Report an abuse | Free forum