Is it normal that I feel worse now than before my diagnosis/medication?
I (prabably stupidly) thought that reducing my CSF from 39 to 20 via the lumbar puncture that diagnosed me, and starting on 750mg extended release diamox the next day would make me feel better. Except I don't!
The whooshing in my ear that practically disappeared straight after my LP started coming back after 2 or 3 days (albeit not as bad, but still pretty loud at times), and the bulging in my vision never really went away (and is now a little worse than it was).
On top of that, I've had headache pretty much every day since my LP, (which I didn't really get before), pain when I press/rub my bad eye (which I didn't get before) and really bad pains in my knee, hips and shoulder (which I didn't have before).
So, apart from making me feel drunk most of the time, and making me sleep A LOT, I can't actually figure out what the meds are doing,
I haven't been given any details of who to contact if I have problems/concerns, cannot get in to see my GP for love nor money, and don't think that contacting the eye clinic who prescribed the diamox is right for joint pains.
Why do I feel sooooo bad? It's what I imagine it would feel like to be run over by a bus, then have the bus reverse over me and run over me again.
Sorry if everyone is reading this and thinking 'yeah, and?' But I was only diagnosed a week ago so this is still all very new to me!