My name is Dave, im 39 from Leyland, Lancashire.
I was diagnosed about 6 weeks ago, first of all my optician found the pappiledema and sent me to hospital, i had a CT scan and i LP which had an opening count 0f 42
About a week after my LP i was so ill that i was admitted for 5 days and started on Diamox.
Whist in hospital they also did an MRI and said i had Stenosis of the transverse sinuses.
TheDiamox worked great for a couple of weeks, my symptoms, apart from my visual problem went away, after a couple of weeks however my symptoms have slowly come back.
I had 10 weeks off work but went back yesterday. Im a travel consultant and work on a computer 8 hours a day 5 days a week, i managed 4 hours on my first day and had to go home to bed. I so badly want to do the job i love but in my heart i feel that its not going to work. I'm very long sighted and have a very high perscription, my vision without my glasses is terrible, dont get me wrong it always been bad however over the last year the deterioration is massive.
I have my clinic appointment on the 1st October so hopefully i can get my dose increased.
This has hit me like a bus, outside my close family nobody is able to grasp what is wrong with me which is frustrating.