My name is Jessica, nickname is Jex and I am a patient of IIH. I was just diagnosed today with IIH, but I was put on Diamox a week and a half ago from my neurologist. I do not know when the symptoms actually started as I have battled with migraines since I was in high school, but it seemed to get worse and I seemed to have some dizziness come into play after my daughter was born in 2007. I thought I was going crazy, so I just stopped talking to my doctor about it.
Back in December of last year I saw my eye doctor to check my glasses prescriptions and she referred me to an ophthalmologist. I waited to go as I had some family issues come up and my husband had some health issues as well, so I did not go in until February of this year. They discovered that I had bilateral disc edema and referred me to a neurologist. From there I had an MRI, MRA, MRV and spinal tap done! It's been a long year already and it's only April!
. Nothing showed up on the scans but the lumbar puncture showed that my CSF was elevated with nothing to cause it. So I am currently on Diamox 1000mg a day and am seeing the neurologist, ophthalmologist and getting my blood drawn every month or so starting in May to check the levels out.
I am very glad to have found this forum and be able to discuss topics with others who understand what I have!
for listening and take care everyone!