I had headaches 2 years ago and a neuro I saw gave me Topomax. He told me if I feel better, that's good and if I don't come back and see him. In January this year I had a sudden onset of excruciating headaches and found a new headache specialist neuro. This one diagnosed me with cluster headaches, but he told me he suspected pseudo-tumor. He said, that's all I'm saying except, "if you go blind get to the ER immediately and give them my soap notes." Being the educator I am, I started educating myself on both conditions and joined a cluster headache facebook support group. After 2 months of posting my symptoms a young lady told me you don't have CH you have IIH and told me to go to an Ophthalmologist ASAP. I made an appt and within 30 seconds of looking into my eyes he diagnosed me with IIH. This was one week ago today. I am waiting for approval to the PTC clinic in Phoenix, AZ and hopefully will be accepted there by the end of the week. I have an appt for a field vision test Monday.
I feel as though my life has gone downhill so quickly. I don't like to leave my house. I have to force myself to go out and do things with my friends and mostly I wonder why didn't that neuro in January just send me for an LP or to the eye doctor?