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 Global Genes Toolkits

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Heidi
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PostSubject: Global Genes Toolkits   Fri Jan 16, 2015 11:44 pm

Global Genes wrote:
RARE Toolkits provide individuals with usable information on a variety of topics related to living with and/or advocating for rare disease patients. RARE Toolkits are being created in collaboration with key rare disease stakeholders that have developed a vast array of subject matter expertise and believe in the importance of sharing these best practices. 
Attachments
GG_toolkit_3final_print.pdf
Bringing Rare Disease to Capitol Hill: Advocating for Your Cause
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GG_toolkit_eight_20140626_web.pdf
Access to Unapproved Medicine: Is This An Option for Me? (USA)
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GG_toolkit_eleven_20141021_web.pdf
Searching for Answers: Contacting Biopharmaceutical C ompanies Effectively
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GG_toolkit_nine_20140725_web.pdf
Gaining Independence as a Young Adult with Rare Disease
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GG_toolkit_six_rev3.pdf
Becoming an Empowered Patient
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