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 Crohns and IIH

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adelineautumn
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PostSubject: Crohns and IIH   Tue May 27, 2014 6:44 pm

Hi guys sorry it has been a while but it has been one hell of a year, i've been in and out of hospital since february and i've finally been diagnosed with Crohns disease =[ I was just wondering if anyone else is dealing with these two diseases together and how you cope with it because frankly i wasn't coping when it was just IIH and now i've a whole new disease to navigate i'm kind of freaking out Help 

Thanks in advance
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medmisfit
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PostSubject: Re: Crohns and IIH   Wed May 28, 2014 9:44 pm

Oh no, I was hoping things were getting better for you..so sorry!!! I have IIH and Chiari Malformation, but at least they're kind of related. I grew up with a friend that has Crohns and she managed pretty well as long as she took her meds. She was also pretty mindful of what she ate and did her best to manage stress. I use past tense because we lost touch a couple years ago, but she was doing well then.

I think it's just another one of those diseases that you'll have to manage the best you can. You won't always have control over it, but you'll learn triggers and tricks for dealing with flare ups. It looks like Crohn's and Colitis Foundation of America has a lot of good info and support networks ([You must be registered and logged in to see this link.]). You may also check with IHRF ([You must be registered and logged in to see this link.]) to see if they have any research on a correlation between the two. I know some members have had good results calling or emailing them with questions.

Let us know if we can help!

 hug 
Julie
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adelineautumn
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PostSubject: Re: Crohns and IIH   Sat Jun 28, 2014 7:47 pm

Thanks so much for your kind reply Smile it's a struggle but ya just have to keep pushing on, ironically my Crohns is now taking my mind off my IIH so that is a bonus Smile ill definitely check those out though and thank you again 


All the best 
xxxx
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medmisfit
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PostSubject: Re: Crohns and IIH   Mon Jun 30, 2014 9:07 pm

You're welcome! Let us know if you get any insight or additional information regarding a correlation..

Take care!!!
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Crohns and IIH

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