HomeRegisterLog inFollow us on facebookFollow us on twitterFollow us on youtubeFollow us on LinkedinFollow us on PintrestContact usFeedback


Share  | 
 

 Rare Disease Day 2014

View previous topic View next topic Go down 
AuthorMessage
medmisfit
Admin2
Admin2
avatar


PostSubject: Rare Disease Day 2014   Wed Feb 26, 2014 4:33 pm

REMINDER: Friday, February 28th, is the worldwide event! The theme this year is "Join Together for Better Care", so I think it's something we can all support. This is basically a day to tell your story and educate the people around you. There are many ways to show your support, but here are a few simple ones..

Globally (http://www.rarediseaseday.org/):

Raise and Join Hands-Members can take a photo for their site and upload as your avatar here to show solidarity with patients and members around the world. Include your children, family, friends, co-workers, and get everyone involved.

US (http://rarediseaseday.us/):

Handprints Across America-Another way to show solidarity. Print the logo and snap a shot to submit for their gallery and use as your avatar here.

Raise Your Hand-Lunbeck donates $1 for every click to NORD's general research fund. NORD is also a great resource for rare diseases!

Another favorite:

Wear that you Care (http://globalgenes.org/world-rare-disease-day/): Wear a denim ribbon or your favorite pair of jeans to raise awareness. Afterall, 80% of rare diseases are in our genes.

You can share your story and find other ways to get involved at the links provided.

 thank you
Back to top Go down
 

Rare Disease Day 2014

View previous topic View next topic Back to top 

 Similar topics

+
Page 1 of 1

Permissions in this forum:You cannot reply to topics in this forum
www.ihaveiih.com :: Donations Fundraising and Awareness :: Fundraising, Research and Raising Awareness for IH-
Jump to:  
DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Protected by Copyscape Web Copyright Protection Software
Top Disability Websites
Free forum hosting  | © phpBB | Free forum support | Contact | Report an abuse | Free forum