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 Worried or Not - Shunt coiling

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sammyjo
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PostSubject: Worried or Not - Shunt coiling   Mon Dec 02, 2013 2:43 pm

Shunt coiling

ok so i dont wonna sound like a drama queen but something is bothering me
a little higher than my scar on tummy (lp/vp shunt) is rock hard the only reason i notised is cos i was getting a stabbing stroke cramp feeling ... so my question is should i be worried and go doctors or should i stop being so dramatic and just ignor i mean its probably nothing and perfectly normal x
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Heidi
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PostSubject: Re: Worried or Not - Shunt coiling   Mon Dec 02, 2013 2:58 pm

Hi Sammyjo, my advice to you is to ring either the ward you were on for surgery, or your Neurosurgeon, just to get it looked at for peace of mind. Don't ignore it, because could be something, especially if it is near your wound. It could indicate that your shunt catheter has come loose, I say COULD I'm NOT saying it has, which is why it needs to be checked. Give them a ring and please keep us updated. You're not a drama queen for worrying about this, you were right to ask, and that's one of the things we're here for. hug
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medmisfit
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PostSubject: Re: Worried or Not - Shunt coiling   Mon Dec 02, 2013 9:04 pm

I would definitely have them check it out, especially since it's a change..better to be safe than sorry! I have a hard spot above my valve that get sore and pretty large, but it's just my facia knotting up from all the surgeries and revisions. It usually eases up with massage, so hopefully it's just part of the healing process for you too!
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Wylee
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PostSubject: Re: Worried or Not - Shunt coiling   Mon Dec 02, 2013 11:54 pm

I agree.  Better to let the doc say nothing to worry about than to keep wondering.

Keeping my fingers are cross
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sammyjo
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PostSubject: Re: Worried or Not - Shunt coiling   Tue Dec 03, 2013 10:18 am

my first lp shunt coiled and it was a huge lump this dosent feel like that x
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sammyjo
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PostSubject: Re: Worried or Not - Shunt coiling   Tue Dec 03, 2013 10:22 am

i am going doctors today though x
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sammyjo
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PostSubject: Re: Worried or Not - Shunt coiling   Thu Dec 05, 2013 11:51 am

ok so i cant belive i am saying this but its coiled again is this normal my 3rd coilling 
can i ask how meany times others have had there coil shunt x
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medmisfit
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PostSubject: Re: Worried or Not - Shunt coiling   Thu Dec 05, 2013 7:54 pm

Wow, did they offer any explanations? Definition of insanity is doing the same thing repeatedly and expecting different results, right?! Ugh, I think I'd be asking for other options at this point..seems like either they're incompetent or your body doesn't like it..lol.

I'm so sorry you're going through it all again..hang in there!!!
hug
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Heidi
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PostSubject: Re: Worried or Not - Shunt coiling   Sun Dec 08, 2013 4:43 pm

It's happened to me four times in the past, one occasion I had gone in because it had coiled and was taken to theatre to have it sorted, only for it to have happened the day after. It's never been explained to me why it happens, just that it can. I wondered if it was because it wasn't as securely anchored as they thought, and any movement had cause it to loosen and coil.
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Wylee
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PostSubject: Re: Worried or Not - Shunt coiling   Sun Dec 08, 2013 5:09 pm

So glad you have a diagnosis.  Now, if they can just come up with a long lasting fix!!
Keeping fingers crossed
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