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 Possibly in remission

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Paper_Mache
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PostSubject: Possibly in remission   Wed Aug 07, 2013 3:59 pm

So I haven't been here in a while, but good news: I am possibly in remission! My eyes are almost 100% normal and in the absence of high pressure headaches and the like, my neurologist has decided to taper me off Diamox to see if my IIH is really gone. Wish me luck!



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Heidi
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PostSubject: Re: Possibly in remission   Wed Aug 07, 2013 7:06 pm

That is FANTASTIC!! I am so happy for you. The best of luck with your neurologist, and please keep coming back an updating us on your progress, it helps other members to have hope with their own IIH, and is very inspiring and uplifting to them.
my fingers are cross

my fingers are cross
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medmisfit
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PostSubject: Re: Possibly in remission   Thu Aug 08, 2013 8:28 pm

fingers crossed That is great news..definitely keep us posted!!!
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MarkyMark
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PostSubject: Re: Possibly in remission   Fri Aug 09, 2013 2:48 pm

That is soooooooo AWESOME!!!! Congratulations and thank youfor posting. We need good news stories!!!


If you don't mind me asking, how long did you have PTC? And was the remission gradual or sudden? Did you feel like you had been getting better for awhile before it happened? Sorry for the questions, but it's kind of like getting stories from the other side LOL.
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BananasMom
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PostSubject: Re: Possibly in remission   Wed Aug 14, 2013 7:50 pm

This is awesome news! Very Happy  I'll definitely be thinking good thoughts for you, hun!  Thank you so much for sharing hope with others who have IIH, and please do keep us up to date on your progress.
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Possibly in remission

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