HomeRegisterLog inFollow us on facebookFollow us on twitterFollow us on youtubeFollow us on LinkedinFollow us on PintrestContact usFeedback


Share  | 
 

 Urgent Patient Experience Required!

View previous topic View next topic Go down 
AuthorMessage
Heidi
Admin1
Admin1
avatar


PostSubject: Urgent Patient Experience Required!   Thu May 16, 2013 6:18 pm

Have you recently attended a regional genetic centre in England? If so, we need your help!

Rare Disease UK has been invited by the Department of Health to speak at an upcoming event looking at genetic services, on Friday 24 May in London. It is an internal departmental meeting, which is being held by the Health Science and Bioethics Division.

Rare Disease UK will be attending the meeting to give an overview of the positive impact that genetic services and developing technologies can have on patients and where improvements can be made.

However, we need you! We would like to take someone along that can give a firsthand patient experience. If you are happy to speak (for no more than 10 minutes) about your recent experience of a genetic service and how it has helped you in understanding more about your condition, or perhaps enabled you to obtain a diagnosis please get in touch. It will help remind those present at the meeting of the value of genetic services to patients.

If you would like to know more, or are interested in taking part please contact Farhana Ali, RDUK Executive Officer - Farhana@raredisease.org.uk
Back to top Go down
http://www.ihaveiih.com
 

Urgent Patient Experience Required!

View previous topic View next topic Back to top 

 Similar topics

+
Page 1 of 1

Permissions in this forum:You cannot reply to topics in this forum
www.ihaveiih.com :: Group Information ::     :: NEWS & ANNOUNCEMENTS-
Jump to:  
DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Protected by Copyscape Web Copyright Protection Software
Top Disability Websites
Free phpbb forum | © phpBB | Free forum support | Contact | Report an abuse | Create a forum on Forumotion