Welcome to the group! I understand your reluctance if you're not feeling sick, but your vision has already been affected. If left untreated you could eventually lose your sight and develop more symptoms, so it's good they caught it early.
Everyone's "normal" is different, but it's usually between 100-200..yours was significantly high. Symptoms vary..some people just have pain, some just have visual disturbances. There is nausea, fatigue, and a whole slew of odd and/or debilitating symptoms, but everyone's different. It's one of the reasons that IIH is so difficult to treat.
There are people that respond well and only have one "episode" of IIH, so you can always hope that is your case. You have visual disturbances with swollen optic nerves, so they really just did the spinal tap to confirm the diagnosis. Losing weight can help to reverse symptoms for some, so maybe try the meds until you can lose some weight and see if it helps.
Check out the site and let us know if you have any questions..we'll do our best to help you figure it all out. I would start with the Useful Guides and Printouts section.