I'm Harriet, 26, and I was diagnosed yesterday. It was a relief at first as it was thought I had had a stroke or had a brain tumour but I am in so much pain from my head that I am struggling to cope :-( I had a lumbar puncture yesterday and have been put on Topiramate. I have lost vision in my left eye, can not hear properly and am just very scared. I had a ct scan and was discharged today with medication to receive an appointment for an MRI scan, appointment with the neurologist and more tests with the eye specialists.
My head feels like it is going to explode, will this continue for much longer at this severity or will it ease? The only relief I have is from lying down but even then its still unbearable. Sorry for sounding so clueless, I had no idea this condition existed until 24 hours ago!