HomeRegisterLog inFollow us on facebookFollow us on twitterFollow us on youtubeFollow us on LinkedinFollow us on PintrestContact usFeedback


Share  | 
 

 low pressure headache?

View previous topic View next topic Go down 
AuthorMessage
acerousme
Member
Member
avatar


PostSubject: low pressure headache?   Tue Jan 01, 2013 6:33 am

So last night, I was down and out with the usual headache. So I went into the ER. And they decided to give me a spinal tap...

they did it blind at first, no flouro team, or X ray....so they did the LP 4 TIMES :afraid: !!!! ..... :cry: ouch...

Then finally they decided to send me down to flouro, who did it right the first time with no pain. my reading was 139, btw.

so now, i am laying flat in bed, but i have a horrid neck ache. And I feel a little dizzy. Is that a LP headache?? Or the starts of one? Or am I being a worry wort? The areas of entry arent leaking or anything, so thats good.

PLEASE TELL ME IM FINE...ugh, no more needles...no.more.... :Angry:

I hope someone reads this quickly...

...............................................and then tells me Im okay. lol

NO MORE HOSPITALS! That was ridiculous. The doctor didnt see any swelling on my optic discs or nerves or whatever, so he thought it was meningitis...what a jerk. He didnt listen to me. I knew what was going on the entire time. He didnt understand that I had the flu, and was still getting over my symptoms. Yes, I have a cough. And we all know that having a flu with IIH is like having crazy aunt Ester visit. woooo....

So I really don't want to go back to the hospital. No more.


Oh and happy new years everyone|!!!


The children almost broken by the world become the adults most likely to change it
Back to top Go down
Wylee
Member
Member
avatar


PostSubject: Re: low pressure headache?   Tue Jan 01, 2013 10:14 pm

Well, good news, bad news. The good news is that according to your lp reading, you do not have IIH. The bad news is, that you have LOW pressure. A reading of 139 (13.9 cm) is lower than "normal" and could certainly account for your increased issues. Because the docs didn't use a fluoroscope, they probably injured the dura (lining of the spinal column) creating leaks. The leaks are probably internal and minute. Do you find that you feel better if you lay flat? Does drinking a lot of caffeine help? If you haven't tried these two, you may want to. Sometimes the holes heal on their own, sometimes you may need a blood or glue patch. Speak to your doc about it. By the way, there isn't optic nerve swelling when you have low pressure.
Back to top Go down
acerousme
Member
Member
avatar


PostSubject: Re: low pressure headache?   Wed Jan 02, 2013 12:52 am

hm odd...The neurologist on call said it was my IIH, and that I was right....So pretty sure its my IIH. It was higher my first reading. I knew it was getting up there because of the gross headache, and dizziness.

Its not an LP headache...just a sore neck from laying flat for almost 24 hours. And the flu. I feel great today...just stiff from the LPs.

Thanks for responding Smile


The children almost broken by the world become the adults most likely to change it
Back to top Go down
Sophiasmom
Admin2
Admin2
avatar


PostSubject: Re: low pressure headache?   Wed Jan 02, 2013 4:20 am

hi Wylee;
I was confused too, but Jenn is in Canada and I don't know if they are using different units but the doc who did the tap told her the reading was really high. it's hard for me to imagine anyone could be alive with an ICP of 139 CM H2O but I think that's what it was. NOT 139 mm H2O. and since she feels better after the tap, it had to be high beforehand.
Deb
Back to top Go down
Wylee
Member
Member
avatar


PostSubject: Re: low pressure headache?   Wed Jan 02, 2013 6:24 pm

Thanks Deb, glad to see I wasn't the only one confused at the numbers!! Maybe the reading was actually 39??

Jenn, the best thing to do is follow your docs orders and do what makes you feel better. As we have said so many times, everyone feels the IIH just a bit differently. Do be sure to keep an ongoing log to keep track of what is going on. Makes it so much easier to stay "on track".
Back to top Go down
acerousme
Member
Member
avatar


PostSubject: Re: low pressure headache?   Wed Jan 02, 2013 10:03 pm

the doctor on call at the hospital was actually surprised I wasnt in a coma, he said it was that high. Funny thing is, a week before I was doing GREAT.

I had very little for a headache, no dizziness, nothing really. I started on my yoga again, and my routine was falling back into place. I felt amazing. Inside, and out. It was amazing!! Even my fiancee said I was just...happier. And I even started looking for jobs.

And then back to all of this. Its like a major slap in the face. To be doing so well, and be getting back on track to this? I feel absolutely ready to give up again. I have never been fond of rollercoasters...metaphorical or physical.. And I dont intend to start now.

Is there really any hope with this disease??


The children almost broken by the world become the adults most likely to change it
Back to top Go down
acerousme
Member
Member
avatar


PostSubject: Re: low pressure headache?   Thu Jan 03, 2013 11:39 pm

I have to make a correction. I talked to my neuro yesterday...my ICP was 42, it was my BP that was 139, then 140. My apologies for any confusion. I knew it sounded high, but apparently being drugged up will do that to ya. Sorry


The children almost broken by the world become the adults most likely to change it
Back to top Go down
Wylee
Member
Member
avatar


PostSubject: Re: low pressure headache?   Fri Jan 04, 2013 3:09 am

[You must be registered and logged in to see this image.] I've never been so glad to hear someone had an op of 42!!

So proud of you for double checking and letting us know the results. Thx.
Back to top Go down
acerousme
Member
Member
avatar


PostSubject: Re: low pressure headache?   Fri Jan 04, 2013 10:28 pm

AND...more great news!...The new neurologists office called today!! I have an appointment on the 8th!!!!! And its perfect because my neuro-ophthalmologist appointment is that day too!!!! WOOOO! my fingers are cross

And I have heard GREAT things about this neurologist. My doctor speaks VERY highly of him. keep your fingers crossed ladies and gents...Lets hope this all gets sorted out, and I can finally go on to live my life!

btw...Not sure if I told you all, my other neuro wanted me to get botox shots in my neck...because it wasnt my IIH, it was migraine...BULLSHARK. I've never been one to be "textbook", and my latest LP proves that.


The children almost broken by the world become the adults most likely to change it
Back to top Go down
Sophiasmom
Admin2
Admin2
avatar


PostSubject: Re: low pressure headache?   Sat Jan 05, 2013 7:03 am

that's fantastic!!!
Back to top Go down
Sponsored content




PostSubject: Re: low pressure headache?   

Back to top Go down
 

low pressure headache?

View previous topic View next topic Back to top 

 Similar topics

+
Page 1 of 1

Permissions in this forum:You cannot reply to topics in this forum
www.ihaveiih.com :: Living with IIH ::   :: Group Huddle-
Jump to:  
DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
Protected by Copyscape Web Copyright Protection Software
Top Disability Websites
Forumotion.com | © phpBB | Free forum support | Contact | Report an abuse | Free forum