I was diagnosed in May 2010 and had this condition for 6 months. I went into remission in November 2010 I thought that was the end of it. Unfortunately the condition came back in Nov 2011. The 2nd time was a completely different experience and I really got to know what IIH was all about. I've had a tough year with the condition there's been some very bad days and low days and I've had quite a few LP's( 6 in a year) but over the last number of months everything settled down and I have been feeling great. I have been medication free for 2 months and my paplodimia is gone and my fields are all good. My last LP was last week and my pressure was 17
. I had my appt with my neuro yesterday and he confirmed that I am in remission again
. I am hoping it will last longer than the last time but I do know if it comes back I will get through it.
Today is my 1st year wedding anniversary and what great news to have gotten for it. We can also start trying for a baby which I just can't wait
This is the worst condition ever and I wouldn't wish it on anyone. I do hope that everyone else here will get some much needed good news in the near future.
This group has been an amazing support to me and I really want to
for helping me get through this.