Bless your heart! I'm so sorry this has been such a long, painful process. I actually ended up with severe pain and seizures after my lumbar shunt surgery. Fortunately, it was an easy fix..they gave me two caffeine drips. I was bouncing off the walls and horribly nauseous, but it stopped the seizures and the headaches. They basically said I lost a lot of spinal fluid very quickly, so would take time for my body to adjust..have they explored low pressure options for your symptoms?
Work is still very difficult for me. We have to be careful about how much we share and who we talk to about it. You may want to look through the Useful Guides and Printouts
section for suggestions. We have advocates for chronic illness here, but I'm not sure who you'd contact for suggestions in Australia. Hopefully other members will have more information for your area. You have to take care of yourself first and foremost though.
I hope you find some relief soon! Please keep us posted and let us know if you have any questions or concerns..we'll do our best to help you through this difficult time!