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 incompetent doctors

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wookie1965
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PostSubject: incompetent doctors   Mon Dec 03, 2012 6:03 pm

So went for LP on 1st October this would have been my ninth in 14 months had no problems before then i got this Doctor tried 12 times hitting nerves making me jump and losing feeling in both legs finally saying cant do it no one else there have to reschedule. 1st November went back this time new doctor got the needle in took reading it was 35 then went to drain fluid off got 10ml then started messing with needle it came out tried several times put back in hitting nerves again left me in agony my back is killing me ive got pain running down my right leg which keeps giving way and ive had no relief from my symptoms. I go back to my Neuro on the 11th December im going to complain and see if he will get an LP done before Christmas otherwise im not going to be any use to any one.
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Heidi
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PostSubject: Re: incompetent doctors   Mon Dec 03, 2012 8:21 pm

It sounds like they hit your sciatic nerve which can happen. You might find this helpful to read Sciatica If your symptoms are the same as the ones listed, have a chat with your Neurologist about it, and he may be able to prescribe you something to help with it.
You're right to complain and to let them know you aren't happy with these past events.
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wookie1965
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PostSubject: Re: incompetent doctors   Mon Dec 03, 2012 10:10 pm

So do i and i could feel both of them hit bone several times a couple of times they tried putting the needle in places where they hadn't even put the local in. This was my 10th LP im on Topiramate now instead of acetazolamide still not working i have seen a Neuro surgeon he wants to put in a stent or shunt but im not too sure about having it done.
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medmisfit
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PostSubject: Re: incompetent doctors   Tue Dec 04, 2012 7:01 pm

I'm sorry you've had such horrible experiences w/ LP. I would recommend requesting LP by fluroscopy, if possible. The radiologist can see where the needle is going and make adjustments as needed. It's still a needle in your spine, but reduces the number of attempts and mistakes. I guess I'm lucky because my neuro-ophthalmologist and diagnostician felt that LP was barbaric and should only be used for diagnosis and emergency purposes..I've only had a dozen or so over the past 15 years, but still have damage to my sciatic nerve.

Personally, I would much rather have a shunt surgery every few years than a LP every few weeks/months. Every time you have a spinal tap it creates damage and scar tissue. With all of your experiences I would be more concerned about permanent damage from LP than a shunt surgery. I know it's a scary process, but I would do the research and talk to your neurologist about the options..maybe consult with a neurosurgeon before you rule it out.

I hope you find some relief soon!

Julie
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wookie1965
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PostSubject: Re: incompetent doctors   Tue Dec 04, 2012 7:43 pm

Thank you i have spoken to a neurosurgeon and he says he wants to perform a shunt he says im a good candidate for it as im having too many LP`s and the drugs are not keeping the pressure down. Ive never had a LP lower than 35 they have told me anything over 25 is too high and i have Palpadema in my left eye the right eye is ok to to now.
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Wylee
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PostSubject: Re: incompetent doctors   Wed Dec 05, 2012 3:51 am

Sure sounds like a shunt would be in order. Talk with the NS and see if a VP or LP shunt would be better for you. I have a lp, with a programmable valve on it. We have changed the settings a few times already, checking to see what is better to help rid me of my symptoms. It is so much better than a shunt without the ability to program the valve. I hope your doc will agree to that too.
I agree with Julie. From your need to have lp's done so often and without the guidance of a CT Fluoroscope sounds awful. I would opt for the shunt and sooner rather than later. Need to save that eyesight!! Good luck.
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wookie1965
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PostSubject: Re: incompetent doctors   Wed Dec 05, 2012 7:10 pm

Thank you so much for your reply s and advice.
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