Hi, i love finding groups like this its so encouraging. My name is Gilliana iam 28 yrs old. I have had migraines since i was a very young child around 5 and everything was just pushed off to saying i had chronic migraines and nothing was done. I was dx'd with IIH or PTC, whatever ur reference is almost 5 years ago. I was dx'd by my neurologist. The first couple of years we attempted every med that was possible to help with the effects of IIH but nothing was working after taking 25 or so pills a day for the first year my doctor asked for an LP and i agreed. We soon found out that the meds was not working, so i got more added some decreased some taking away. With my life basically at a stand still, my doctor requested permission to get another opinion about what we should do (he nor i wanted to do a shunt) I was sent to the university medical center here and was told basically sorry you dont have PTC you dont have any pressure around your eyes and sent me on my way. Things just continued to get worse meds was not helping so a 2nd lp was done and my pressure had increased, i literally laid in the OR for 2 hours while fluid drained from my back . At that point my doctor said no more lps, and sent me to a surgeon. I had a VP shunt placed in January 2011. I still get my daily headaches and migraines weekly, i have opted out and stoped all meds together. My body was just breaking down from so much stuff. Theres days i regret doing the shunt but then i think about what would be going on if i had stayed on the meds. My kidneys would have shut down, and i dont much enjoy being out of reality due to being medicated. Theres no quick fix or any slow fix to this disease and ive learned that fast. Meds dont always and wont always work, and surgery is just a temp. solution.