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 here comes the storm

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sammyjo
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PostSubject: here comes the storm   Fri Nov 23, 2012 12:56 am

First topic message reminder :

i have had that typical iih head ache since a week after my last lumber puncture a montyh ago and now the double vision has started pain killers arnt working now which we all know can only mean one thing there is a lumber puncture on the horizen....

i just hope i can hold out long enough untilll my surgigal consult on 11.12.12 so he can see me at my worst and hopefully my surgery will come faster.. i just hope i have the strength to wait out the storm and not give in and go for a lumber puncture

sorry if this dosent make sence did it with one eye closed coz when i close one eye the double vision gose away

[You must be registered and logged in to see this image.] and every pray i can think of that i can ride this storm x
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sammyjo
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PostSubject: Re: here comes the storm   Mon Nov 26, 2012 12:05 am

i know the lack of knoledge is absoultly STUPID. nice to know people feel the frustration thanks marlana x x
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Sophiasmom
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PostSubject: Re: here comes the storm   Mon Nov 26, 2012 1:36 am

how awful I'm so sorry for the ignorance of my colleagues. I have to say I knew little about IIH until I had it. but as a pediatrician we didn't get any training in it, so I don't know what the ER docs etc got, you would think more than me. if it helps at all, I intend to do what I can to increase awareness. I'm trying to publish a hypothesis paper right now that discusses IH, in relation to two other conditions. at some point I will probably approach the IHRF.

but, you would think, if you said to the doctor "I have IIH look for the papilledema in my eyes" that they would do that and pay attention and treat you appropriately. since he ignored you and said it was a migraine, in my book that is negligence and malpractice, and I would complain to the hospital. that person is a poor excuse for a doctor if you ask me. just going through the motions. maybe complain to the medical board too. what a joke. the thing is, that even if you hadn't said anything, the STANDARD physical exam for a person presenting with a headache is a full neurological exam and fundus exam, so he should have looked in your eyes regardless, and found the pap without your prompting.
Deb
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sammyjo
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PostSubject: Re: here comes the storm   Mon Nov 26, 2012 12:03 pm

thank you for for your great attempts to give the mediical knoledge good luck with you enevour i will keeo ur challenge in my prays.

pilgrim hospitail boston lincolnshire are excuse my french but poo. when i have lps there they let traines do it and asuure me they have had plenty of practise and at the top of thier class 9 times out of 10 they have to atteppt to place the neddle 15 times i have had nerve damage alot infections not enough fluid taken off oh and not for getting the magial time when one of them snapped the needle in to my spine x x xhence why my specialist and now my neurosurgeon is from nottingham hospital x
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Aliviamom11
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PostSubject: Re: here comes the storm   Tue Nov 27, 2012 2:39 am

We all have that one bad experience..i have a cyst filed with csf in my back..i have to have it cut and drained... I'm just waiting until I have surgery and they can do what they want.. im to their point where I just want to enjoy some part of life.. meet the person with vodka to go with my lemonade and drink and have a good time. thank you :lol1:
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sammyjo
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PostSubject: Re: here comes the storm   Wed Nov 28, 2012 11:37 pm

28th of november today and actually feel like i am gonna die my6 head feelsd like its gonna pop my ears r leakining some kind of water and i cant get to the hospitail AHHHHHHHHHHHHHHHHHHHHHH
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Sophiasmom
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PostSubject: Re: here comes the storm   Thu Nov 29, 2012 6:35 am

Sammy that may be CSF leaking out of your ears, you need to go to ER! at the very least please call your doctor ASAP.
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medmisfit
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PostSubject: Re: here comes the storm   Fri Nov 30, 2012 2:56 pm

Sorry for the late response..I hope you've been able to get to the hospital or find some relief. It really sounds like extremely high pressure or something more happening here. Take care of yourself and keep us posted.

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Julie
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here comes the storm

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