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Global announcement:

BUY A WRISTBAND OR LAPEL PIN


Merchandise Annoincement
 
0Heidi3443on Tue Feb 18, 2014 10:18 pm
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Programmable shunts being affected by the magnets in tablet computers.
 
1sinister4164097on Thu Nov 14, 2013 5:36 pm
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Admin Announcement
 
18Heidi5077on Thu Sep 19, 2013 11:55 pm
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IMPORTANT SURVEYS
 
0Heidi4736on Fri Nov 02, 2012 8:42 pm
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Partner Organisation
 
0Heidi3157on Mon Mar 19, 2012 10:57 pm
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Urgent Advice
 
1Heidi2873on Tue Apr 05, 2011 10:29 pm
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Please Get Involved Announcement
 
2medmisfit1638on Fri Feb 15, 2013 9:21 pm
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No new posts 0sinister4161395on Wed Apr 18, 2012 3:19 pm
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Member discussion
 
0Heidi1300on Tue Oct 11, 2011 2:41 pm
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Announcement:

Volunteers Needed


Admin Announcement
 
0Heidi1764on Sat Jun 04, 2011 10:30 pm
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Admin Announcement
 
0Heidi1567on Fri Mar 02, 2012 10:42 pm
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Partner Organisation Request
 
1Heidi2413on Thu Feb 16, 2012 4:10 pm
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We're asking members to describe what they like to do best to fund raise
 
0sinister4161304on Tue Feb 14, 2012 5:31 pm
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Help Raise Research Funds for the IH Research Foundation
 
0Heidi2050on Tue May 18, 2010 9:21 pm
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 Topics  Replies  Author  Views  Last Posts 
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Show Your Rare
 
5medmisfit444on Fri Mar 02, 2018 5:33 am
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New member from USA, sharing my story.
 
2es1101771749on Wed Apr 26, 2017 4:02 pm
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IIH Awareness Month
 
0Heidi987on Sun Sep 04, 2016 7:33 pm
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Patient Voice
 
3medmisfit1285on Mon Mar 21, 2016 7:37 pm
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Information
 
0Heidi1617on Sat Apr 11, 2015 7:39 pm
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Get Involved
 
0Heidi1102on Tue Feb 10, 2015 5:02 pm
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Partner Campaign
 
0Heidi1583on Wed Mar 12, 2014 4:32 pm
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No new posts 0medmisfit1008on Wed Feb 26, 2014 4:33 pm
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Rare Disease Day Awareness Campaign
 
0Heidi1596on Fri Feb 07, 2014 5:54 pm
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Rare Disease UK Partner
 
0Heidi1037on Tue Jul 02, 2013 8:05 pm
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Admin Announcement
 
0Heidi1246on Fri May 10, 2013 5:49 pm
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No new posts 0Laura2462on Tue Feb 26, 2013 5:25 pm
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Rare Disease UK Announcement
 
0Heidi1019on Fri Feb 15, 2013 8:42 pm
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Rare Disease UK Announcement
 
0Heidi1064on Fri Feb 15, 2013 8:41 pm
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Partner Organisation Request - Rare Disease UK
 
0Heidi1243on Thu Jan 17, 2013 4:22 pm
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Admin Announcement
 
0Heidi1233on Fri Jan 11, 2013 10:13 pm
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By Danielle Young, Associate Editor
 
0Heidi1759on Sat Jan 05, 2013 8:09 pm
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IH Awareness Posters/Banners
 
0Heidi3688on Tue Aug 28, 2012 5:58 pm
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Admin Announcement
 
0Heidi1246on Thu Jul 12, 2012 6:17 pm
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NORD
 
1Heidi1309on Fri Jun 29, 2012 2:22 am
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Proceeds go to IHRF
 
0medmisfit1189on Thu Jun 07, 2012 2:25 pm
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Partner Organisation Request
 
2Heidi1610on Thu Feb 16, 2012 4:16 pm
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Rare Disease UK Announcement
 
1Heidi1525on Wed Feb 15, 2012 7:05 pm
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Campaign Partner Information
 
0Heidi1317on Fri Feb 03, 2012 12:39 am
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Admin Announcement
 
0Heidi1220on Tue Jan 24, 2012 6:34 pm
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Information
 
0Heidi1235on Thu Dec 22, 2011 6:51 pm
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Information Video by an IH Sufferer
 
0Heidi1536on Wed Sep 21, 2011 1:03 am
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Partner Organisation
 
1Heidi1468on Wed Jun 29, 2011 8:37 pm
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Fundraising for the Brain and Spine Foundation UK
 
2Heidi1596on Sat Jun 25, 2011 4:51 pm
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Member Fundraising Information
 
0Heidi1701on Thu Mar 31, 2011 6:46 pm
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IH Research
 
0Heidi1525on Sat Mar 13, 2010 1:03 am
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DISCLAIMER This group is not managed by anyone in the medical profession, but by people who are either affected by, or are closely connected to IIH. Information provided on this site is meant to complement & not replace any advice or information from a health professional, users and members are reminded that medical professionals should always be consulted in all aspects of health needs.
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