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Global announcement:

BUY A WRISTBAND OR LAPEL PIN


Merchandise Annoincement
 
0Heidi2958on Tue Feb 18, 2014 10:18 pm
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Programmable shunts being affected by the magnets in tablet computers.
 
1sinister4163749on Thu Nov 14, 2013 5:36 pm
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Admin Announcement
 
18Heidi4652on Thu Sep 19, 2013 11:55 pm
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IMPORTANT SURVEYS
 
0Heidi4425on Fri Nov 02, 2012 8:42 pm
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Partner Organisation
 
0Heidi2850on Mon Mar 19, 2012 10:57 pm
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Urgent Advice
 
1Heidi2608on Tue Apr 05, 2011 10:29 pm
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Announcement:

Member Profiles


Admin Request
 
0Heidi546on Mon Apr 25, 2016 7:34 pm
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Administration Announcement
 
0Heidi1041on Sun Jan 03, 2016 3:06 pm
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Admin announcement
 
0Heidi693on Mon Feb 02, 2015 6:05 pm
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Member Participation
 
0Heidi1052on Mon Aug 04, 2014 10:53 pm
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Announcement:

URGENT RECRUITMENT UK


Announcement
 
0Heidi1050on Mon Jun 16, 2014 4:21 pm
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Announcement
 
0Heidi851on Tue Apr 22, 2014 5:23 pm
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Admin Announcement
 
0Heidi995on Thu Jun 28, 2012 1:52 am
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 Topics  Replies  Author  Views  Last Posts 
No new posts 1BananasMom973on Thu May 07, 2015 5:42 pm
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URGENT RDLA Alert
 
0Heidi1684on Thu May 16, 2013 6:31 pm
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Rare Disease UK Partner - RDUK Executive Officer
 
0Heidi891on Thu May 16, 2013 6:18 pm
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Latest News from the IHRF
 
0Heidi983on Sat Apr 20, 2013 5:29 pm
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Admin Announcement
 
0Heidi932on Wed Apr 10, 2013 1:08 am
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Admin Announcement
 
0Heidi893on Tue Apr 09, 2013 8:30 pm
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NORD News
 
0Heidi822on Wed Mar 27, 2013 9:41 pm
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FLAGS
 
0Heidi1064on Mon Mar 11, 2013 4:14 pm
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Partner Organisation Request - Rare Disease UK and Global Genes Project
 
0Heidi1046on Wed Jan 09, 2013 6:26 pm
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News from Everylife Foundation
 
0Heidi899on Wed Nov 28, 2012 6:44 pm
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Rare Disease UK Announcement
 
0Heidi777on Fri Nov 16, 2012 5:36 pm
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No new posts 0Heidi880on Fri Oct 05, 2012 6:24 pm
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Admin Announcement
 
0Heidi1017on Wed Aug 29, 2012 7:15 pm
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Rare Disease UK Announcement
 
0Heidi820on Thu Aug 23, 2012 7:52 pm
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Admin Announcement
 
0Heidi925on Fri Aug 17, 2012 3:35 pm
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Information from the Personal Independence Payment assessment services
 
0Heidi1230on Thu Aug 02, 2012 8:32 pm
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From The Global Genes Project
 
0Heidi833on Thu Aug 02, 2012 8:23 pm
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From the National Alliance for Eye and Vision Research (NAEVR)
 
0Heidi927on Tue Jul 17, 2012 10:19 pm
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Admin Announcement
 
0Heidi950on Thu Jul 12, 2012 1:23 am
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NORD
 
0Heidi834on Tue Jul 10, 2012 12:18 am
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Admin Discussion
 
0Heidi778on Thu Jan 12, 2012 7:13 pm
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