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Pseudotumor Cerebri (PTC) Benign Intracranial Hypertension (BIH) Idiopathic Intracranial Hypertension (IIH) Secondary Intracranial Hypertension (SIH).

You'll all have one and the same condition. It is known mainly as the latter one as there is no known cause, hence the idiopathic. Confusing we know! If you've just been diagnosed you can get together here with others to talk over how you feel about it, and ask the long-term sufferers lots of questions and advice on how to deal with it.

	Men and IIH Introductions and Updates		Women and IIH Introductions and Updates
	Teens and IIH Talk about the problems you face with school college uni etc.		Motherhood/Pregnancy & IIH Share your experience of parenting with IIH
	Group Huddle Got a question? Need to vent or talk about something that's bothering you? Then this is the place for you to do it.		Members Journal/Blog Get things off your chest with your own journal or post your blog
			Alternative Therapy Talk about other methods you've tried to help you

We want you to tell us about successes you have had since being diagnosed with IIH. They could be anything from going back to work, to telling us if the coping methods and guide sheets we have, have worked for you, and if since treatment things have improved. We want to show that having IIH isn't all doom and gloom, and that your successes will give hope to those newly diagnosed and to those who are struggling. Every success you have will help someone else to achieve the same success based on your experience. So please post.

Answer or create a poll of your own about things relevant to life with IIH

Ask any of our Admin or Moderators to help you arrange to meet up with members in your surrounding Areas. Make sure you also state which country you are in.

Are you friends with someone who suffers with IIH? It's important for you to understand what they are going through and just as important for you to have as much information as you can to help support them. Share your experiences with others and ask them how they help support their friend.

	Introductions Share your story		Group Huddle Having a bad day? Got a question? Share it

Talk about IIH medications here, are they working, the side effects and other topics to do with them.

Discuss topics about visual problems with IIH.

Working with us to give you greater support are the RNIB.  They provide the following services; Advice, Emotional Support, Eye Health Information, Legal Rights, Talking Books and  Talk and Support

You can call the RNIB Helpline 0303 123 9999 The helpline is open Monday - Friday 8.45 - 5.30

  or email helpline@rnib.org.uk or adviceservice@rnib.org.uk

Help and Advice about VP, VA and LP shunts, Venous Stenting and Optic Nerve Sheath Fenestration and Sub temporal Decompression

Weight is often said to be one of the main factors of IIH. This section will enable you to talk about any issues you have with weight and weightloss, including diet, weightloss pills and surgeries. Share your worries and frustrations with other members who understand.

Our Information and Education booklets are

• I Have IIH Medication log
• I Have IIH Symptom log
• I Have IIH Task log sheet
• I Have IIH Guide - Informing People About Your IIH
• I Have IIH Guide - IIH - A New Way of Life
• I Have IIH Guide - Talking To Your Doctor About IIH
• I Have IIH Guide - Talking To Your Neurosurgeon About IIH Surgery
• I Have IIH Guide - Talking To Your Neuro-Ophthalmologist